Who we are
The DTDS Foundation is a registered 501(c)(3) nonprofit organization. This means we operate as a recognized charitable organization under U.S. law, with a mission to serve the public through research, education, and family support. Our tax-exempt status reflects our commitment to transparency and accountability in everything we do. We are dedicated to using our resources responsibly to make a meaningful impact for those affected by Dopamine Transporter Deficiency Syndrome.
The DTDS Foundation is a nonprofit organization founded by families, for families — united by a shared experience with Dopamine Transporter Deficiency Syndrome (DTDS), a rare movement disorder that causes progressive (worsening) dystonia and parkinsonism. Our mission is to improve the lives of patients living with DTDS by accelerating research and development of treatments, while raising awareness of the disease. What began as a personal journey quickly became a mission to bring hope, connection, and progress to others facing the same diagnosis.
Our story began when Kelly Moyer, our founder, received a life-changing diagnosis for her child. In the search for answers, support, and a path forward, she realized how limited resources and awareness were — and how powerful community could be. That realization sparked the creation of the DTDS Foundation.
Today, we’re proud to support families around the world by funding promising research, sharing trusted information, and creating a compassionate, informed community. We believe in the strength of families, the power of science, and the importance of never facing rare disease alone.