What are the benefits of joining the DTDS + RARE-X Data Collection Program?

RESOURCES
Written By Christie Browning

1. The DCP is free for families.
2. Patients, parents or caregivers can complete the surveys in their own homes.
3. The DCP can be used as a control in future clinical trials. This allows all eligible DTDS patients to receive the actual trial instead of a placebo.
4. It allows any researcher worldwide who is interested, and fully vetted by RARE-X, to access our patients' data collectively. This means that they can look at all the symptoms in the bigger picture.
5. Patients own the data. Patients dictate what de-identifiable data is shared by the privacy settings as well as what surveys they complete. Patients can leave the DCP at any time and take their data with them. Any surveys that have been completed can be saved and shared with individual doctors for better understanding of the disease.

Want to know more or get started? Click here!

Learn more about RARE-X by clicking here.

Christie Browning

Christie is a five-time HSPA award-winning writer with a long resume of creative, compelling writing. Her background includes journalism and marketing, which allows her to bring a specialized voice to the pieces created for her clients. On her own, Christie has written for newspapers, online magazines and major publications. For her clients, Christie produces web designs, press and media releases, blog articles, downloadable worksheets and flyers as well as social media content. Her long-time career as an entrepreneur gives her unique insight into what her clients need to promote their products, services and messages.

https://www.contentbyrequest.com
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