RARE-X believes that by enabling rare patient communities to more easily gather, structure and securely share critical inclusive data, through a common platform, in collaboration with researchers, drug developers and clinicians anywhere in the world, they will accelerate diagnosis, disease understanding, and development of future treatments and cures across more than 10,867 rare diseases. Learn why you should get involved.

Living with Dopamine Transporter Deficiency Syndrome (DTDS) brings unique challenges, but with the right tools, support, and mindset, families can find strength, connection, and hope. Here are some helpful tips for navigating life with DTDS…

Navigating a diagnosis like DTDS can be challenging, especially when it comes to understanding medical terms and treatment options. Here are some tips to help you communicate effectively with your healthcare team…

DTDS can look different from person to person. While some children begin showing signs very early in life, others may not experience symptoms until later in childhood or even adulthood. Doctors generally describe two forms of DTDS based on when symptoms appear and how the condition progresses…